Juneau child’s clinical trial set to proceed in new year after community raises more than $1 million

After Juneau residents helped raise more than $1 million this fall, a local boy with a rare genetic disease will be able to receive a potentially life-changing gene therapy in the new year.

For the past two years, 4-year-old Cade Jobsisʼs mother Emma Jobsis has been raising money to allow scientists to restart clinical trials that previously showed promising results treating AP4 Hereditary Spastic Paraplegia, or SPG50…(Read full story)